1 in 8. 1 in every 4. 5%. 5 years.
If you or a loved one have experienced a cancer diagnosis, you know these numbers unfortunately all too well.
The ratio of people with your disease, survival statistics, estimated duration of survival.
But what if we built a community that threw these statistics away, ignored them, treated them for what they really are: old and outdated, statistically skewed?
What if we built a community that really inspired hope, not just talked about it? A community that was resourceful, connected, reliable, and free from medical bias.
You see, my mom was a perfectly healthy 60 year old. Didn't smoke, not a heavy drinker, exercised a couple of times a week, ate well - in recent years was a vegetarian, and had no previous medical history. In fact, as her 28 year-old son, my medical history was quite worse.
She was diagnosed with stage IV pancreatic cancer in June of 2014. By the middle of September, we had already lost our fight. And we fought, she fought, like hell.
If my family could lose our rock, our foundation that quickly, it can happen to anyone. It already has and will continue to.
So how do we remain proactive, in an entirely reactive medical environment?
A symptom arises, try a medicine. A disease arises, try a therapy. Your disease progresses, try something else. And fast.
We change the game. We equip families, loved ones, caregivers with the tools they need to stay ahead. We arm a community.
I'm sure like most, we received stacks of papers and brochures from the hospitals, cancer centers, organizations, and online resources. Is it me, or did these often feel like just words on a page to anyone else?
One of the things we noticed was that one leading cancer institution doesn't tell you about the amazing work or additional resources another leading cancer institution has available. Why not?
I can't tell you the hours I spent researching. Researching clinical trials, reading about alternative therapies, nutrition, supplements - anything I could possibly get my hands on to make my mom feel a little bit better, to help us feel in control, ahead of the cancer.
But it was time consuming - extremely time consuming. I had to sift through countless useless, or well-intentioned but 'just fell short' resources, websites, articles, just to find a good resource, a good tool.
Something that went beyond just education but helped with execution. Beyond words on a page.
We want to build a community that connects caregivers & patients to the most valuable, innovative, and best resources out there. To make it simple, to learn from one another, and to help you take all the emotions that come with a cancer diagnosis (fear, anger, sadness, anxiety, depression) and channel those emotions into action.
We'll start with the wheel. Inherently simple, fundamentally sensible, yet emphasis lies in the fact that each one of these pieces plays an equally important role in your care. Knowing your oncologist and his/her team is only a piece to your overall care is very important. And we'll build from here.
Founded by caregivers, shared amongst extended family.
So, who's in? Join us.
Because, together we can do anything.
In memory of our loving mom who taught us the true meaning of family and what it means to care for others.
too long (TL) ; didn't read (DR)
We are building a community that will help change the cancer landscape for the better. Through community, sharing of knowledge and resources from an unbiased perspective, we will give families, patients, and loved ones the tools they need to be informed and ultimately beat this disease.